CAR-T and Cellular Therapy Worldwide Survey

CAR-T and Cellular Therapy Worldwide Survey

Dear MSH Members,
Please see below the link for the CAR-T and Cellular Therapy survey which has been initiated by the Worldwide Network for Blood & Marrow Transplantation (WBMT) in conjunction with assistance from UT Health Science Center San Antonio. The purpose of the survey is to better understand the worldwide situation with regards to the availability of both commercially approved and investigational CAR-T therapy as well as other forms of advanced cell based therapy (example being mesenchymal stromal cells). It will provide insight not only into the availability of these therapies worldwide but also of issues pertaining to accessibility, manufacturing capabilities, apheresis, accreditation and presence of regulatory frameworks and legal oversight of these cell-based therapies. This data gathering exercise will facilitate our discussions with our affiliated partner-the World Health Organization (WHO) with the intention of trying to achieve equity of access to life saving cell-based treatments, especially CAR-T worldwide. It will also help WHO in understanding the landscape of cell therapy across different regions in terms of the crucial scientific, clinical, and regulatory components needed to achieve equity of access. This is an entirely fact-finding survey, and all results will be handled with strict confidentiality. Individual data and responses will only be accessed by the primary investigators for this survey. All results will be presented by region/country rather than by institutions. This survey is to be filled by the program director or a designee and each institution should only be represented once. Do feel free to write more in the free flowing text provided below and for those who are unable to fill up every field/question, we would also like to receive your reply. It is also important to receive survey replies from those who do not have any form of cell therapy in their hospital/centre/institution. Participation in this survey is completely voluntary. Nonetheless, we would strongly encourage participation as we expect this survey to generate important data which could lead to further important initiatives, especially with WHO. For any further questions, enquiries or issues with the survey, please contact:

Mickey Koh, MD
Hildegard Greinix, MD
Mahmoud Aljurf, MD
Fazal Hussain, MD
at mail@wbmt.org or mickey.koh@stgeorges.nhs.uk 

This survey should take less than 15 minutes to complete. Thanks very much for participating in this survey. 

LINK:   

https://uthscsa.co1.qualtrics.com/jfe/form/SV_0plkcuqDW3bSpOC

To ensure easy access to the survey, please follow these steps.

  1. Please be so kind to take this survey from a laptop, and not from a phone or other type of device;
  2. Make sure you are connected to a secure and steady WiFi network;
  3. Copy and paste the link to the survey in an incognito/private browser. You can open the incognito mode as follows: on your keyboard, please press Ctrl, Shift, N simultaneously (for Apple users the correct combination is Command, Shift, N). Once the incognito page has opened up, you can copy and paste the link in the field and start the survey.